There are many wonderful blogs out there. I am honored that you are reading mine!

Saturday, May 15, 2010

Raising Our Celiac Kids (R.O.C.K.)

A R.O.C.K. chapter can make a big difference in the life of a child with celiac disease, gluten intolerance and for any child whose pediatrician has suggested a gluten free diet. My family has attended R.O.C.K. activities.  The chapter members were so welcoming and supportive.  This is in part how I learned about many gluten free products that are not just gluten free, but delicious.

If you were to ask me how I found out about R.O.C.K., I would tell you that I got very lucky. It happened on my first trip to the grocery store after my son's diagnosis. My husband and I were wandering around somewhat bewildered, wondering if our son's diet was ever going to include bread again. An employee of the store must have seen my distress and during our conversation she handed me the card of a R.O.CK Chapter Coordinator.

The following is the story of  R.O.C.K  founder, Daana Korn. For the entire article, a list of R.O.C.K. Chapters across the United States, and books written by Danna Korn, see the following link
Danna Korn founded R.O.C.K. in 1991 after her son, Tyler, was diagnosed with celiac disease. It has grown to international proportions, helping families all over the world deal with the unique challenges of raising a child on a gluten-free diet. When children are diagnosed with celiac disease at an early age, they usually have a severe intolerance to gluten, and are often extremely sick when ultimately diagnosed. Most parents share horror stories of visiting several doctors before finally arriving at a diagnosis, and are frustrated, exasperated, and angry, yet relieved to finally have a direction in which to turn. Sometimes it helps to talk about it, and it always helps to have some guidance when initially diving into the gluten-free diet. Raising Our Celiac Kids is a support group for parents, families and friends of kids with celiac disease or gluten intolerance. We welcome families of autistic kids involved in a gluten-free/casein-free dietary intervention program.

No comments:

Post a Comment