I was diagnosed 3 years ago in June. If you have been diagnosed and really don't know which way to turn for help there are some really great resources. Through the University of Chicago you can not only get information about celiac disease but also by meeting certain criteria you can get a Gluten Free Care Package.
The National Digestive Disease Information Clearinghouse website is another source that is very user friendly and very informative. I recommended this website to my son's elementary school administration when he was diagnosed.
I am pleased to post that the prestigious Philadelphia Award was given to Alice Bast, Founder of the National Foundation for Celiac Awareness (NFCA) for her dedication to raising celiac awareness. Gluten Free and You would like to congratulate Ms. Bast on her award and thank her and the staff of the NFCA for their commitment to raising funds for research, education and screening.
Bast will be given the award, along with the $25,000 prize that comes with it, on May 17th, 2011. source: The Gluten Free BulletinThe following is the Mission and Vision Statements from the National Foundation for Celiac Awareness
Mission:To be the leading organization in raising awareness for celiac disease and gluten intolerance that will facilitate research, education and early diagnosis, and improve the quality of life for children and adults affected by this autoimmune disease.
Vision:We envision a world in which:
- Celiac disease is widely recognized as one of the most common hereditary diseases.
- Better, more accurate, and cost-effective screening methodologies are available and in use.
- A pharmaceutical cure is in place to prevent the onset or mitigate the effects of this autoimmune disorder so that men and women suffering from celiac disease and dermatitis herpetiformis can lead a normal life
One last current event to share is that Sarah Jane Smith, one of the the NFCA's Celiac Disease Athletes for Awareness played this past weekend in the LPGA Championship presented by Wegmans in Rochester, NY. According to the LPGA Season Overview, Sarah has had seven starts and one top ten finish. Congratulations Sarah!
"I changed my diet because Celiac disease runs in my family. Earlier this spring, I stopped eating wheat or gluten. I cut out bread and pasta and it's really helped. I feel better on the course and the new diet has given me more energy. It requires a lot of planning, though. You can't just grab a sandwich when you go out on the course. Now, I eat a lot of gluten-free energy bars, fruits and nuts, and rice cakes with wheat-free peanut butter." ~Sarah Jane Smith source: Gluten Free NYC